In April of 2013 i opened my email and my Life would never be the same . This little girl was staring back at me and I know that she was meant to be Mine! In my heart she already was mine. and then they told me she was sick, very sick and In Fostercare in Florida and this was her last chance to find a family before she would moved to a medical facility. And 2 weeks later I was driving from PA to Florida to get my daughter!
She HAS Tetrology Of Fallott and at this time the expect her to live till she is 25 maybe 30. She is Gtube fed… Funny thing is ( not so funny) when I went to pick her up the foster mom didn't bring her feeding pump and I had to spend 12 hours calling all over to place to find one / couldn't bolas feed she couldn't take more then 60mls over an hour. it was a mess! I left the agency and took her right to regent care where they had to put her on antibiotics and steroids for bronchitis . Thank God I was staying with my grandparent ( grammy MO is a hospice nurse) and was able to hook me up with portable o2 for the drive home!we spent 7 days waiting for icpc to clear before we could leave florida. Nana and Poppop, Leah and Trin can down to visit for a bit and Meet Cambria.
When we got back to PA , we quickly got in to see our Great DR's At Nemours Dupont childrens Hosp.!!!! They got us sorted with Cardiology , Pulmonolgy, Speech therapy, OT and the wonderful Diagnostic referral team to monitor every thing! then cam Open heart surgery…
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